It’s time for Autism Speaks to listen!!
It’s time for Autism Speaks to listen!!
What most people can’t fathom is that Autistic and Disabled people everywhere are capable if only they are given a chance and given their rights to live better in the world. There was a recent study which said that people with Autism Spectrum Disorder like Aspergers actually have too much empathy where it’s hard to cope with others because of it. If you haven’t read about this yet, please do so, here! Most people do not understand the reasons why people withdraw from the outside world, do not understand the anxieties of Autistic folks, and do not understand the meltdowns.
Human beings are very diverse and the diversity of so many different people around societies give us more to learn about. Everyone is learning slowly about what it means to be Human. Being Human means we are all in it together and need to bring our communities together. No one is less than Human, and everyone has the many ways of being who they are.
Everybody needs to know to give people a chance to live their life. Living life is not living in a group home, sheltered workshop, or other institutions. It’s living amongst the community while the community helps each other. There is no one left behind and everyone is included. Unfortunately, many people do not think this way. Instead they feel segregated institutions are the way to go. Though many people forget what happened during segregation throughout history.
Community-based programs allow Autistic and Disabled people to live independently with help from the community at large. The more the communities come together, the more people will understand, the more people will listen, the more acceptance there will be, and the more Autistic and Disabled people will be able to feel more comfortable in their societies. Being comfortable in the environment and being comfortable with the people around you, only lifts the barriers completely that Autistic and Disabled people have faced all these years.
There are many people who neglect to listen to someone because they are slower to talk to or need to communicate in other ways. However, listening to everyone speaking is not just listening with your ears. It’s also listening with your body. It’s important to follow your intuition and know that your intuition of how to listen to someone is different for everyone you listen to. Everyone has empathy, but some people in general ignore the empathy they were born with. It’s important to not ignore it, not push it away, but soak it all in guiding your strength with it.
The guidance we as a disability community get from the rest of the community at large only makes us a better person. So, the communities that we live in should always include everyone in conversations about them. It’s important to know that we have always lived in an interdependent society where everyone should be supporting each other. ‘Nothing about us, without us’ is so important!
Disability is a construct. Humanity is not perfect. Disability is truth about life. Disability gives us our humanity. From my childhood, there have been many people who did not understand what being Disabled means. Disability does not mean dependence and even does not mean failure, it just means growth: Growth where we live, growth in our minds, growth in our strength, and finally growth in a spirituality like anyone else would. From that growth, we will all succeed! It truly means that disability is a not a raging war against others and it’s not rage against humanity; it’s just part of humanity. We need to respect all of humanity.
The Disabled community has suffered oppression, seclusion, segregation, and confusion from Abled society. Autistic people in particular are told to quiet our hands, tone down our voices, schedule our days to what they want from us. They cover their ears instead of listening to us. For instance, there even was a recent news story about an Autistic youth being given vocal cord surgery! Society is confusing when they state that people are always listening to each other. For example, the Autism Speaks slogan is “It’s time to listen,” well, now it is really time to listen to Disabled and Autistic people around America and beyond since most people still do not. Many people have started to listen in the past few years, but everyone needs to listen to us, the Autistic and Disabled communities of what it’s like to be us! No one can tell another person who and what they are, everyone knows who and what they are already.
Live your life and everything will work out. Don’t feel like you need to hide anything about yourself. Disability is a guide for us to live our life.
(I know it’s a while since I posted last, but I have been going through a lot lately. I will be posting more often.)
Sixteen years ago or so there lived a boy in a home in the countryside. He was very quirky, thoughtful, positive, stubborn, and very smart. It was 1997. The boy was first graduating from High School. He had many multi-sensory issues and loved being alone in his room with his own thoughts. He loved creating scenes of different ideas he came up with. He had a beautifully intelligent and creative mind. No one really understood him. The professionals did not really know what made him different from the rest of the world. Whatever professionals he saw, thought he seemed different, but they could not figure exactly what was different about him.
After this boy graduated from High School, he wanted to go away for college, and so he did. He went to a college off from a beach and loved the amazing views. He thought he wanted one major in college, not realizing it was not the major for him. However, he declared his major and struggled studying within that major. He always had a love for helping and a love for expressing his creativity. There are two directions you can choose; the road most suitable for you or the road less traveled, however he chose the road less traveled to begin his life.
The boy was always creative throughout his childhood. He spent most of his time in the basement of the family house, creating and expressing himself by visualizing scenes in his mind either writing it down or sketching on pads. He wrote many stories and painted. Though he never really kept these creative activities from his childhood once he became an adult. He only wanted to help people. He had a passion to be helpful in any way he can. He grew to be very humble and in a lot of ways too humble for society. This pushed people to take advantage of his humility.
Finally, his difference was addressed by a professional who told him he was on the Autistic spectrum in which he labeled him with Asperger’s syndrome. Later, this person would identify himself as Autistic to show that it does not matter what label a professional gives you, that you can converse with anyone. He started expressing how Autistic culture exists and how we have many ways to identify ourselves as, that identity first language makes better sense and should be accepted. People in this world need to converse to help anyone. He became an activist with a passion to not let anyone with a disability be treated like any less of a person. Instead of following in others’ lead, he decided to lead himself toward his goals toward acceptance and leading people to understand why interdependence is so important for everyone. He cries for the people who are totally dependent on their circumstances in life and only wants them to get to a point where they, too, can follow their dreams to be interdependent. When he hears people say I want my independence, he listens to them as he speaks louder by saying how all Human beings need both independence and support from others because we all need to support each other at some point. He stresses to Neurotypical people this very fact that no matter who you are everyone needs to be apart and comforted at the same time.
He follows his own lead and tries not to think about what others care about what he is doing. However, he gets criticized by others anyway. He tells himself all the time, ‘I don’t care what you have to say, I am being the leader I want to be to follow my heart’. While looking for a job that will pay him well, he starts to may be consider opening up his own business where he can help people to start living their life without other people’s influence and always be self-determined to live a life of their choosing to build a positive society. Though it would take careful planning to do that.
He always was told to fuel himself so that no one takes advantage of his good nature so he can live the dream he always wanted. This boy who is now a man, sixteen years later, is always trying to remember this. Though it is hard and that is why people have gotten away with it in the past. He met a friend a few years back who is very similar, was once told by one of his family members to always stay strong. When either of these two friends see each other they converse to each other to stay strong after they meet. In the meantime, the boy who was a boy sixteen years ago created a motto from his life to always move forward without looking back. He created his own action heroes too. As of now, the boy who is now a man, has many more goals he wants to accomplish in his life. Although he is still considered to be young with many goals, he has a lot of drive to change the world and be successful!
It makes me sad that there have been parents and caregivers that have killed their offspring. Parents and caregivers who murder their kids because they could not handle their child’s disability are mostly seen as the victims and often sympathized. However, if a person with a disability murders, the person with the disability who has murdered is seen as evil. This does not happen as much as parents and caregivers who murder their Disabled children and society does nothing about it. Why? Anyone who does that should be put to trial!
Acceptance takes time. Sometimes a person needs to review themselves and understand who they are before they can accept who they are. Not everyone has a master plan to do the same thing like their peers, that is why everyone has a different perspective on what peeks their interest to help society. Every one needs to figure it out on their own without letting a parent, caregiver, teacher, peer, behaviorist, etc. get in their way. No one should feel unsafe in their lives. That is the reason why Autistic or Disabled people like myself feel the need to feel safe in the world just like Neurotypicals do.
The only fair reasoning for anyone to get in the way of another person’s thinking is if another Human being wants to murder or harm another person. For instance, no one can murder any Human being regardless if they have a disability or not. That is why we have Justice courts to send the murderers away from society. Everyone deserves to have a safe, positive living environment. Anyone needs to be able to live however they know, to be independent, while interacting with the rest of society safely. That is why Autistic and Disabled people may work with therapists because they want to be able to interact with society safely and be independent.
Murder is murder is murder like a pulse is a pulse is a pulse! If something has a pulse, you can’t just murder it. Everything with life has a purpose and has time to accept themselves so everything else around with a pulse has time to accept their family or peers. And yes, acceptance takes time, a lot of precious time to reflect and love who we are. It’s very important to not only accept ourselves, but also to accept others as they are. People like parents and caregivers of Autistic and Disabled people need to continue to live their lives interacting with others in a positive way just like my parents always do. I luckily have a good support network.
Don’t forget that everyone needs to love the person they are meant to be and never let anybody else bring them down! Society needs to understand one thing in life; being able to love and cherish the people who really care and appreciating those positive moments we all will give in the future or have given already!