My name is Jae (pronounced J) Ross who is a 41 year old disabled disability activist and genderqueer, Neuroqueer, Neurodivergent person. My pronouns are they them theirs. Please when referring to me use these pronouns if you don’t use my name Jae. I am a part time Augmentative and Assistive Communication (AAC) user as well and I am Autistic.† Being a part time AAC user does not mean I am treated less than, it does not mean I use it all the time, it just means I know when I need to talk and when I need to type to speak. This does not mean I do not talk like everyone else. I am starch and blunt person who will tell it like it is even if you may not like what I say.† This blog has evolved over the years as I grow every year. I got my Masters degree in disability studies at CUNY School of Professional Studies Disabilities Studies program. I support disability rights organizations which support the need for disability justice.
We have to all communicate with each other. We need to represent a person for who the person is, not what the other person thinks the person is. And, we cannot support anyone who misrepresents a person and a disability even though we see it in the mass media misrepresenting a person or group. Everyone deserves respect without pity or shame or being a victim or being hurt, because we are all people and citizens in a society. I support and a member of society for disability studies (SDS). I am also creating a TASH NY chapter and support TASH. I want to take Disability studies into the media by creating film media projects to help change the perceptions many people have about disability. I have an idea for a documentary I want to make, from a class project I already did in Spring 2015. The project is on a website at Disquake, the link for the project is here.
I may have been diagnosed with Asperger Syndrome, but please refer to me as an Autistic person, not a person with autism or a person with aspergers. I have always believed in Neurodiversity.† A phrase I often hear from everyone is “I may be Autistic, but for some reason everyone loves me when they meet me”.
I am the type of person who always wants to learn and do new things. I gear up for it. Whenever I see something new, I try to experience it unless say its something that won’t be good for me.
Asperger Syndrome is part of Autistic culture which is sensory, motor, social, language impairments and differences. It also attributes to anxiety. Anxiety plays a big part as well as when the person growing up is around people that don’t understand or know that what we are about. So, it also attributes to post-traumatic stress disorder. This can lead to problems in adulthood if the person doesn’t seek the right help when the person is in social situations. I also have many multi-sensory issues and I do stim often for various reasons.
My special interest is very specific, it lies in a section of medicine. I was always fascinated by medicine. Especially how the blood moved through the body and was controlled in essence by a pump of what we call the Heart. My interest in the heart happened from a personal issue I was having with it myself. Although, I am not a Autistic savant, my interest varies too. I begin to realize what my true passion is to helping many of my Autistic peers out there whether verbal or non-verbal, to see their inner gift spark up and shine bright. I have always been wanting to help others. May be it’s why I was on the Board of Community Alliance for the Ethical Treatment of Youth too! Helping others learn to express themselves and be their own person that can give them their own voice is so important and a huge passion of mine. As I get older, I feel I have no regrets to the things I have done. I did the things I did in order to grow as a person and lead myself into doing the things I need to do without giving up!
I am an artist, filmmaker, and poet! I am working on a full feature script, a youtube series of my character puppets, and other media in the mix of it all.
I write many forms of fiction and poetry also, but I have not been published yet.¬ I also do much artwork as well! One day I will be published too. I have been taking non credit film classes for the past few years.
Please read through my blog posts and feel free to comment. I can be reached via the contact form on this site. Also, I work very hard on this site to spread my message, please feel free to donate with the button on the main page if you enjoy my work.
I did the voting page for NYC MOPD in 2018 during my internship
I work at BRIDGES. I am starting YAY! Youth and You Self-Advocacy Network for BRIDGES. and follow on twitter @YAYDisabledYouth
(The ugly VOR caused and still causes problems for parents I will not even mention their link to click on, they are just gross!!!!!)
Other things I support for various reasons either from 1 friend or due to the whole organization doing some good things.
National Autistic Society in United Kingdom – The main Autism Charity everyone needs to support first!
Lights! Camera! Access! for media professionals like myself with disability
The Alliance of Citizens Directed Supports – A fairly new alliance for self-directed individuals and a way to connect everyone together.† I am a member of!!
Adaptations.† – A social and self-advocacy organization building relationships for and with people with disabilities in the community and to build relationships with nondisabled disabled people too if they choose to. They also have employment services.
Self-Advocacy Resource and Technical Assistance Center the best from SABE which collaborated with every self-advocacy organization to do this
SABE the National Self-Advocacy organization which is just AWESOME
Self-Advocacy Association of NYS The original self-advocacy org in NYS the best
Autistic Self-Advocacy Network – they are a young and growing organization that is growing in the right direction. This organization has done some awesome stuff too and I love those things!
Autism Science Foundation -† †They do some really good awesome stuff! I call them out on stuff too, but they still respect me a lot and in return I respect that they can change even if it’s very small.
Association for People with Disabilities from the late Justin Dart who assisted heavily with the Americans with disabilities Act
Disability Rights Education and Defense Fund a great organization – A great organization doing immensely good advocacy
Rooted in Rights – A advocacy organization for disabled peopole and a blog edited by Emily Ladau (a good professional friend of mine).
Autism Speaks – I support my friend Stephen Shore who is a board member of this organization. I do not link it to this site since I generally don’t like them.
I support Temple Grandin, PhD autistic person who has been a good kind mentor to me the past year on the phone with me. She says things i disagree with and can be harmful, but I can call her out on it, and she still respects me. It’s okay to disagree and still be friends.
Find your state Protection and Advocacy Pro Bono Law center like Disability Rights New York for people with disabilities to get lawyers
Micheal Gilberg, ESQ – a powerful special education attorney who is autistic too who identifies as a person with Asperger’s Syndrome
Richard Perry, MD – The best Ally the Autistic community can ever have who helps Autistic people from those with high support needs to low support needs achieve their own individual self-determination. Also, he has been in the field for Autistic people for 41 years or so.
Office for People with Developmental Disabilities – This is for New York State, but go and find your state for helping find yourself as a person with Intellectual and Developmental Disability and/or with your family to get the services you need whether you self-direct or you are in traditional services.
National Council for Independent Living – This is the main center that helps monitor all the Independent Living Centers in the nation
New York State Independent Living Council – NYSILC – find your state or create your own government run Independent Living Council
Not Dead Yet – a wonderful organization too I really support! they did the first vigils for people with disabilities murdered by family and caregivers a long time ago.
Convention on Rights for Persons with Disabilities – CRPD† from the United Nations – this is a treaty for people with disabilities to be treated equally and fairly throughout the world. The United States never ratified it yet.