The beginnings of a book I am going to write to help heal another person on the Autism Spectrum

Surgery can be a difficult process to go through, but being on the Autism
Spectrum can make it even tougher. Many people on Autism Spectrum would be
subjected to sensory overload, anxiety, and agitation when going through
surgery. When I had my first surgery 2 years ago on my Pancreas and Spleen,
I felt a need to scream to get people’s hands off of me, but I also
discovered these people were there to help me. This year after having open
heart surgery to repair an aortic aneurysm and repair my aortic valve (my
original aortic valve remains in tact), I felt the same way, only this time a
bit more comfortable. The hardest part was after the surgery, the anesthesia seemed to drive my sensesin overload causing a meltdown. I did not know what I was hearing, seeing,
or feeling. But overall, I was better able to handle the situation.

I understand it was necessary to cut me open literally, but I want to know:
Why do they have to be so aggressive? I suppose sometimes it is necessary. The hardest part was when I had to be awake for them to put in another chest tube on my right side of my body. I have extreme pain tolerance, but this knocked my sensory system out of whack
even more. The Physician Assistant who performed the procedure, did not
want to do it to me, but had no other choice. It saved my life from filling
up fluid in one of my lungs. It is necessary to be aggressive sometimes.

I feel grateful to be able to be here and tell a story which is why I am
writing a Guide for Autistic People who are having Surgery. Any one’s life
is like a roller coaster since our life has really positive moments mixed in
with negative feelings/experiences. The main idea is to hold on to the
positive feelings/moments to be able to live a fully healthy, satisfying,
and happy life. May we attack ourselves for being unhealthy physically,
certainly not, but what we need to do is live our life experiencing love,
not pain.

Surgery can be quite hard to deal with and hopefully my Guide book will help
those people who are Autistic or Asperger’s in need of surgery deal with the
necessary evil. The necessary evil which may hurt us at first, but in the
end heals us from the ultimate pain. Please look out for my book when it is
completed, though it is in the very early stages of rough draft. I hope to
heal those anxious feelings from another person on the Autism Spectrum who
needs surgery.

posting soon enough,

OUT, J

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2 thoughts on “The beginnings of a book I am going to write to help heal another person on the Autism Spectrum

  1. Kirstie Baldino

    Hi I was just searching the Internet, when I found your blog link posted on Twitter. I found that your websitesite was really neat and I’m going to tell everyone I know about this blog!

  2. Dakota Ramn

    Jason,
    I watched a documentary you were featured in today, “This Emotional Life.” Which in turn led me to your blog. I just wanted to let you know that you inspire me and I have nothing but respect for you. Your struggle is not an easy one and you have done an amazing job superseding any expectations. Stay strong, you are in my prayers
    Sincerely,
    Your biggest fan,
    Dakota Marie.