Tag Archives: self determination

A Poem called “Pride within and without Prejudice”

Pride within and without Prejudice,

by theamazinJ

Must be proud,
without prejudice,
everyone is solid,
everyone’s fluid even with gender,
even with their thoughts,
even with strong willed thoughts
that we all think and think that,
no one is solid enough just to be rich,
no one is solid enough to be you, me, or anything,
everyone is vulnerable,
vulnerable to the point of moving away from you,
moving away from institutional thinking,
moving away from complicity,
moving away from compliance of what
the world wants stemming away from authenticity,
beating us down, beating us, beating us,
until we are all the same
and until no one is different,
and without authenticity,
however, what is authenticity?
Finding you, finding me, finding ourselves
until we are found,
found guts, found what we are.
Everyone has the guts,
everyone has the strength,
speaking to be well,
weaker than weak,
stronger than strong,
all in between.
Have you ever loved someone
so much, and found everyone
never really experienced who you are,
what you are, and think they are?
Maybe that is the problem,
maybe that is the thing that needs fixing,
maybe that is the thing we need,
we need
we need
we need
we need
we need what we want,
we need what we want
we need what we want
we need what we want totally
totally in our strength,
in our strength
to be who we are,
who we are in a world
who wants complicity
in a world who wants compliance
instead of respect,
instead of manners,
instead of receiving and giving and respecting boundaries
to the other person(s) or groups around.
They take our children,
they take our dignity,
they take everything,
but most importantly,
they take our love away,
only to say we have to love
the governing bodies or the complicity of compliance
that does not make sense,
because we are totally impart from that,
we are totally not like that,
and we are totally explicitly
controlled, we are all totally implicitly remarked
and we fight,
when we are told our voices are unreal,
when are communications are invalid and distorted,
and all our thoughts have to be programmed
the way dictators see it
even when dictators don’t recognize it
even when dictators can’t see it,
even when too many look too closely,
even when we just have the right
to freedom of speech regardless how we speak,
regardless what we want to say
to be complicit only to ourselves
compliant to the person we are individually
and never ever strike a match
start a war,
and fight another person
because we don’t like that
or we don’t like it
or we just have it
in the world around us
because we speak for what we want,
and it’s always nothing about us, without us.
I love so much you
take it or leave it,
but never understand it,
because you never will
only for complicity
and for the unwillful act
to dictate and the unfulfilling
rights to be struck by a exemplary probation prohibition,
even when we are all really the person we are born as
and no one can take that away,
no one can get us to comply to behaviors not making sense,
and no one has the right to act
like they have it all, when they really have nothing,
think about it,
we cannot feel when we can’t comply to something not making sense.
When it’s really pride without prejudice
without being someone else.
Amen.

A Poem Called “Humanity’s Rhetoric”

Humanity’s Rhetoric,

by theamazinJ

It’s my own rhetoric,
different from your own rhetoric,
different from the rhetoric of the nonautistic, normal condition,
different from American conditional rhetoric
harboring eugenics which is now called genetics,
but different than genetics and science,
different from worldly cultural conditional dominant rhetoric
in the mass media,
and the less accepted rhetoric I have known on my own
and what I learn recently
and try to communicate
is a part of a unique different rhetoric
affixed to complete,
affixed to infinitely affinity to yours and yours,
but it’s still different and unaccepted rhetoric
from the dominant discourse
many in the mass media,
many in politics,
and many of the lay persons even know…
my rhetoric, your rhetoric,
it’s all about being the human being
we all were born as,
it’s all about being the conditions
everyone wants to live by,
rhetoric of rhetoricity,
rhetoric rhetoric rhetoric,
echo it, echo your own,
echo the rhetoric you speak of
like everyone else does
if only to come to an understanding.
I live for my own,
while you live yours,
yours may be the dominant rhetoric,
while I am minority away from the dominant cultures,
embedded in disability culture
within my own body, my own thoughts, and the way I live
even as my own Autistic and stimmy and tic embodiments
experience the world
as part of my humanity
with my own way of centering myself,
with my own way I move,
with my own way of connecting,
with my own way of communicating,
and
with my own way of language
that many may not understand,
that many may not duplicate,
and that many may not know how to communicate,
because the rhetoric is different than yours,
different than theirs and different all around
both of us,
I love you, but the rhetoric is different,
even though the rhetoric we use
is different, but
it’s unique to both you and I.
The rhetorics speak for itself,
rhetorics are a part of the human conditions
in the being of being human
in the eternity of time to live.
I love you, but can you understand me
even when I don’t understand you,
and does it matter,
because if it mattered
my love for you and the world
would not be anything and everything
to me,
I love you, you and the rhetoric you speak of,
and the rhetoric different from you that I communicate,
but can we gather the ideas from our rhetorics
and finally understand each other,
if only with an open mind
like every other individual speaks
of their own rhetoric
around the world,
otherwise we would not be human.
Amen.

Citizen’s Vulnerabilities and the Rights of All in this Society

Autistic people have rights just the way everyone has rights to be a leader of their life; Autistic people are thinking the way they want to think and are also human beings too with our own mind. Autistic people have feelings often feeling for others and have feelings that often feel pain by many other people who do not understand us. Autistic people grow up at different paces while others may just grow at the same pace as their physical age. Because many Autistic people grow at different paces, we are often thought of as less than human, deviant from the norm, and due to our impairments many in society look down upon us thinking we do not have a mind of our own nor are we able to make logical decisions about the life we want.

Though, Autistic people are vulnerable, and depending on the impairments, depend on how vulnerable the individual will be. It does not matter if the person is less impaired, they can be more vulnerable. Just because Autistic people are vulnerable does not mean we are not our own person. May be so many do think that way because Autistic people feel so many emotions at once, that at times we either do not know how to use our emotions scaling back inward or use our emotions too much being considered to be over-emotional, rageful, and illogical. Whichever way Autistic people are, we are misunderstood by society as a whole, thus society is misguided in the way everyone should think of Autistic culture and human society in general.

From all of this misunderstandings and misguided ideas from years of a perception that someone with cognitive and sensory impairments is not capable, not competent, some in society are finally learning today. The tragedy of this kind of thinking has created this between Autistic people and the rest of society. There are a lot of people who need to take responsibility for these actions.

Many people before Autism Speaks have contributed to this between Autistic people and the rest of society. Unfortunately, the mainstream mass media has contributed to this as well by conforming to the ideas of this subjective interpretation. Many people are suffering from a society that lacks understanding. This war against Autistic people is really a war against humanity and human nature. The battle to fight for either correcting the genome from disability to embracing the genome and realizing cognitive disabilities like the way Autistic culture is, is something that needs to be accepted just as many other neurodivergences need to be accepted too.

How far do we go to changing the human genome? Is it our right to change the genome that mutates and changes randomly over time? Who gets to say which parts of the genome are bad or not? And, is the human genome really a bad thing as many medical researchers are trying to correct it to make a perfected flawless human being? Is eugenics or genetic counseling really needed?

My feelings as a person who is Neurodivergent from outside the norms of society and as an Autistic person leads me to believe that I often feel like pushing to be who I am while getting pull back from society to make me the same as how others are. The fine line between autonomy and being who we are versus depending on others to conform to the standards of society is enormously thick, yet we need to pull one way and push another to be included in the community. Autism Speaks as an organization has been through a rough war because many people feel their misguided thinking for almost 13 years has been too hurtful to many who feel they want to embrace who they are regardless. This makes me feel that everyone needs to re-think what we have done in the past.

Our society created the mindset of the perfect mind and body back when Francis Galton created the word ‘eugenics’ and the world decided that between Darwin’s evolutionary theory and his cousin, Galton and his creation of the word ‘eugenics’, that everyone became instantly obsessed with the human genome. To perfect the body and mind is to deny disability and separate from the imperfect human body to create a monster master race of the human genome that everyone will strive to be. This monster master race that everyone has been striving for since the late 19th Century, created the thinking that Hitler wanted to first exterminate people with varying degrees of impairments to eventually exterminating certain races, religions, and other peoples in the Holocaust who he thought society could do away with. I am sorry to say, but the world created the way Hitler would eventually think about how the human genome, race, and religion whether we like it or not. We couldn’t control how some people would interpret this thinking even today. However, this is not the only thing we need to take responsibility for, we also need to take responsibility for many other things throughout history both in our private lives and in the public.

Everyone seems to not understand that trying to perfect a human genome is trying to perfect something that is constantly mutating, constantly changing, and constantly moving around in our bodies just like the universe is constantly moving. We are human beings so I understand why many people are obsessed with perfecting (and perfected) bodies and minds. However, perfecting a body and mind, is a very fine line between what we think is autonomy and what we think we need to depend on others for help. As we are Human beings who live in this world, we are connected to each other regardless of the way we identify through race, religion, sexuality, gender, or disability cultures. The way we represent ourselves is independent of being human because being human really means that we need to support one another regardless since we all go through the same trials, tribulations, and rewards in life.

Supporting decisions and the way we as individuals experience life is important. The person centered approach most are beginning to learn now, is something that is a part of human nature since the beginning of time. Yet, we have in the past, and in some ways still do, only respect the decisions some people made, while others we felt could not make decisions at all and could not think on their own. We need to give everyone the tools to decide and think about what they want in their life on their own. This thinking presumed (and in some ways continues to presume) many people that their decisions are illogical and not right. Making decisions for our life depends on what kinds of decisions we are making. Some decisions we can decide on our own, but many other decisions we need support from people who can help us choose in making the best decision our life. In the end, the final decision is ours.

Whenever anyone makes a decision, it not only affects us, but it also affects everyone close to us in that decision, and in some ways can affect the rest of society as well. For example, when any one decides that they want to change the way their child is, they are making a conscious decision that will affect the way their child will feel about themselves and toward others as well. These decisions we make affect us individually in many different ways. If a child rebels against their parent’s decision to change who they are, then the child and parents must take responsibility for their actions. Deciding on changing the way a person is, also changes the way everyone feels about themselves. It is important to attribute every decision we make to the way we think about others and ourselves in our life. When we think about who we are as a person, we think about where we came from, and the people in our life that affect what we think. Sometimes what we think can hurt who we are and/or other people.

Autism Speaks may not have been thinking everything through in the past how they are helping Autistic people in society may not be actually helping Autistics in society, but they are learning over time slowly. Every organization has their own agenda to what they think they are doing is right. Yet, everyone and every organization, through medical charity or self-advocacy, cannot know exactly how everyone feels because we all have our thought process and experiences that are different than others.

When thinking about supported decision-making, everyone thinks about the way they want to live their life. For example, an individual may choose a different way of living than many other people do on an actual daily basis, but that does not mean that individual is not living a quality life. A quality life is subjective to what an individual actually feels they want in their life. No one can suggest a better quality of life or social skills to make others conform to a society that is not universally designed for everyone. We need to remember who the person is as an individual and how individuality really is what everyone wants as a single mind of their own.

This leads to too much frustration because of a social construction of conformity the mainstream media has used every day. Some people may be more frustrated with who they are than other people because their experiences with how society treated them or how individuals who treated them in the past made them feel particularly unjustified and unaccepted living their life. This responsibility is what everyone needs to fully grasp and think about how to create a unified world with justice.

Everyone has their own way of living while having their pride and joy that makes them feel good about who they are. Everyone does what is right for them, but no one has a right to tell a person that the way they are living is not quality of life. Many times some impairments create situations that make a person feel they cannot function enough and in fact need accessibility and universal design to help them get by or even thrive in society. So, why cannot we create universal design in everything we do in society so that everyone feels that they can live their life the way they know best? Our society has always conformed to the idea that its citizens are vulnerable and need to be corrected to fit in, not in their natural way of living.

The world is a tough place to live in. Autistic people can be vulnerable, everyone is different to the person next to them, and simultaneously we can all be vulnerable to what others are thinking. However, it does not mean as individuals that vulnerability is a weakness. Everyone is an individual who can think on their own. Human culture is defined; all of us think whoever is standing out in that moment yelling their voice the loudest, is the leader. This is not true, we are all leaders of our own life.

In order to think through how to create a less vulnerable society, we can help by providing to strive for universally designing a world that everyone can live in with dignity, respect, getting their voices heard, and able to function with everyone around them no matter what. Everyone can lead their own life whatever way they want to live. We need to do better and we need to ease the pains of so many people, including Autistic and non-autistic alike.

A Poem Called “Labels”

Labels,

by theamazinj

Labels are important,
they can be very powerful,
when one is called stupid
to when one is called crazy.
Labels are important,
they tell the kinds of things a person is.
Labels are powerful
when used
like when we are called Brilliant, Honest, or a Liar.
Labels can hurt or be very respectful
especially when using the words,
Racist, Ableist, Abuser, or even Loving.
Words can hurt, but they can also heal.
I love you. I hate you. I despise you. I am in awe of you.
Labels are NOT just for cans, they are for everything and everyone.
It’s why TAXONOMY exists, it’s why we always use them.
Labels are important.
I love you,
I hate you,
I filter you.
I am so in love.
I am so in anger.
I have anxiety for you.
Labels are important.
Labels are important.
Labels are important.
Labels help and can also hurt.
They hurt when we use the R word,
they hurt when we use the N word,
however, we spin a word around
and make it a different word with a different meaning
so easily.
Like for the R word, Rich,
and the N word, Neighborly.
When we think of words,
we need to think of the positive words
and the positive meanings
and when we want to criticize,
instead of saying,
Ableist or Racist or Misgyonist or Sexist or Heterosexist or even pervert,
we need to treat people with respect and positive their whole lives,
once we label a negative word to a person
it sticks with that person for life.
Life’s journey is saturated with labels,
it’s saturated with bigotry,
it’s saturated with misunderstandings and miscommunications,
So, does labels go on cans and people?
Of course they do, they do every day.
So, it’s labels important?
Yes, of course they are.
Labels were created because of TAXONOMY,
because of categorizing,
but we can label things giving people something to live up to,
or we can label things giving people a dark windy tunnel to run through
trying to find the light.
sometimes we have to realize,
Being disabled is a part of life and is not a bad word,
we have to realize being Autistic is a part of life too,
we have to remember being Neurodivergent is a part of life as well,
and that society’s so called ‘normal’ is derogatory
even when called ‘neurotypical’ now and even
the way everyone embraces that social construction of ‘normal’ or ‘neurotypical’.
TAXONOMY is important, and labels are so powerful,
Just think about the labels
and you can think about your life.
Labels that are given to and accepted by individual citizens
do in fact define a person,
so think about when you call a person crazy, stupid, insane, ugly, overemotional, or even irrational,
how much pain you may be causing someone,
and may be you may want to use more positive words about anyone,
like intelligent, creative, loving, caring, and even beautiful.
Words matter, labels matter, labels mean everything.
The social construction of ‘normal’ is important, but not very logical.
Just remember being disabled or being neurodivergent is a thing
everyone experiences.

A Poem Called “From Death to Life”

From Death to Life,

by theamazinJ

I died.
I live.
I went to heaven.
I went home.
I came back.
I went home.
I left the hill.
I walked the plank.
I swam in the ocean.
I climbed the highest cliff.
I walked across on the bridge to the next cliff.
I flew with my wings.
I flew to the ground.
I dropped my wings.
I started walking.
I walked over the bounty.
I crawled onto the ground.
I sprawled my body spreading myself on the grass.
I sent over my gold.
I received my award.
I journeyed through the heavens.
I spent my ferocious volume expending my knowledge.
I guru’d my life.
I leapt through thou.
Thou created me.
I created thou.
I am Thou.
I am heaven.
I am hell.
I am darkness.
I am light.
I am.
Up, down, up, down.
Lifting me.
You lift yourself.
I am lift me.
I expend the journey of death
to live life into my head,
into my brain, into my mind,
into my heart bleeding before you.
I spill myself to you.
My richness into the light,
my goals of the spot.
My spot going good,
depleting the bad.
Spilling my guts.
OMG OMG OMG,
I am dead, no, I AM ALIVE.
My liveliness is a journey.
the pill is pain,
the passing to be something different is hard.
the passing to be me is easy.
the passing to be disabled,
the passing to be non-disabled,
the passing to be neurotypical,
the passing to be the original neurodivergent self I am,
passing into the slides of pane healing the pain.
Life constitutes life.
Death hardens death.
Death is a social construction.
Life is continuous.
Continuous life while crossing the curtain,
while crossing over to the other side.
The other side that is unknown,
that is scary, and that is life.
Life is scary, but we need to jump at it.
Life is scary, but we need to focus on what we want,
not what others want, but really what we want individually.
The tyrant or the martyr or just the person that we are.
I love you. I love you so much. I love you with all my might.
My mighty love is great, it is extensive.
extensive to be smart, to show our intelligence, to brighten up with our creative nature.
Making artistic expression, making creative continuity, filming our life’s journey
into the separate waves of the world.
I love you, can you love the world you’re in?
I love you, can you turn your hate into love?
I love you, can you turn your naive, ignorant, and lies into truth?
I Love YOU, so I want to see you in my heart, in my dreams, and in my reality,
because, I love you, I love all of you, and I love every piece of everyone.
Spend time in your heart to love
when life can go from low to high in a blink of an eye,
essentially cause of how much you show love
and how much you gain from love.
Spread love to spread life until we cross over into the depths of more life.