It takes effort,
It takes comfort,
It takes me,
It takes determination,
It takes a willingness to be honest,
It takes the ability to do,
so why lie or be lied to,
when there is the truth,
when there is the honesty of the truth,
when everywhere we go the truth is behind us,
the truth sets us free,
even when we have done things to hurt,
even when we have done things irresponsibly,
even when we have triggered many people,
even from our own chronic post traumatic stress throughout life,
even with the hurt and pain that we have felt
it doesn’t mean others have to feel that pain too,
it does not mean everyone needs to hear it,
it just means we have to let it go,
It just means we can’t hold on to something just because,
It doesn’t mean that we allow anxiety to take it over
and control it and exasperate the events or what was heard or done that was painful,
It just means that we let it go,
Let it go and move forward,
understand, determine, listen, guide,
sure, many took advantage of who I am,
sure, many misunderstood and misunderstand the person I am,
sure, sure, sure,
it just does not mean everything needs to be about what happened or what was said or what was done,
it’s about believing, feeling, and shutting it out of the mind,
putting it in the back of the mind
to recall once we are lying on our old bed with gray and smiles all around
ready for a laugh, ready to wipe away the tears, and ready to move forward,
for now, it’s time to move forward on the journey to that moment,
it’s time to live the life it was meant to be,
it’s time to think everything about what I want and not so much what everyone else wants or just thinking about everyone,
it’s my life, it’s my art, it’s my films, it’s my poetry, it’s my work as a scholar I am meant to do to make differences,
It’ time to live, it’s time to focus on me, it’s time to de-focus on those past events, those past things I tried, and be in the present,
I am me, so who are you.
I want me, so what do you want.
I crave my talents. So, what are you going to do about it.
I always listen to my own mind. So, what do you think about that.
I study, I read, I paint, I film, I do many things within my studies. So, how do you like them apples?
I mark my journey to the end to the beginning when I am ready. So, what?
I scope the map of my journey and everything I want to do and get done before it’s too late. Hah, are you ready for me? are you ready for what I can do?
I will have a positive life that I want to have. A-HA, why are you laughing?
I know what I am capable of and I know when and how I need support. Think about that.
So, let’s go and do this thing we call life, and live.
Because in the end, it’s all about living while having ups and downs, while maneuvering through obstacles, and working on what I want,
looking forward to the beginning when I am ready, and the journey to the beginning when I am old and gray.
Let’s do this! let’s live! let’s give it our all! And, once and for all, let’s just be the best we can be!
Take care and see you around.
A Different Normal, A Normal different me, Different Kinds of Relationships,
Thinking of me, think of you,
Thinking of you, me,
Thinking of what ‘special needs’ that really aren’t special because they are just our needs,
thinking like you think I can do things that are very hard for me,
and thinking you think I can’t do things that are easy for me,
I have a lot of energy, but I am disabled.
I am able, yes, but I am also disabled.
Disability is part of the human experience and everyone needs to embrace their life and love everyone every day regardless
because at any point, life can be over, or we can become disabled or more disabled even…
I can become more disabled any day like you can become disabled at any time.
and you will still see and think I can do things all the time even though I am disabled.
Normal is different, normal is fake, normal is unreal,
I am disabled, and pushed to the brink of my energy, my time, and my limits,
even when my spoons are low or my lifely body portrays you to think of what you think,
You tell me to use my spoons wisely, so as not to burnout,
you tell me to work on things of what you want me to work on,
when I am who I am, even with what I can do and can’t do all the time,
even with being able to do anything at any time I am able to do it,
I can’t do anything everything everyday, but I can do anything at my time.
I noticed I do things when my feeling to do the thing
I want to do is when I have the spoons to do it
and decide to focus on that thing I want to perfect or just want to do or just need something to do to feel good,
Disability is a thing, it exists, and we have to accept
the things we do, things we don’t do, and things we have the spoons for to do the thing we are doing,
I am different, yes, and most importantly, I am disabled and able,
I able to do things on my time, when I am ready, and when I have ambition, and when I have determination to do it,
My normal is different from you, different to you, and very potent to my life,
I can do, I do need support, but I don’t need you to tell me or what you think I can and can’t do,
What is support,
Support is different because support is helping someone like me achieve self-determination of what I want to do, of what I need to do, when I am ready to do it,
Support is giving me the time to live on my own in my own living area with my own things and seeing you when we have time for each other,
Support is giving me the opportunity to do what I want and what I choose for myself and supporting me while doing it,
even when I am writing something on my own, even when I am doing art, even when I am creating film, even when I am reading on my own, or even when I just need space,
Support is giving not what you think, it is not giving me love when you think you want to give it, but reading me well enough to know when I want it,
Support is giving you love when I feel you want it,
Support is not telling me rather just giving me the opportunity to talk about certain things that are hard for me to talk about,
Support is not telling me, and thinking I just don’t know and am told, and support is being included in conversations about me,
Support is great when I am supported and not told, supported and loved, supported and can talk to you about things that are hard for me to make it easier,
support is when my anxiety is eased because I don’t feel pressured, I don’t feel told, and I am feeling in control,
I love my support regardless who you are,
I need support in certain areas just the way anyone else needs support in those areas, so just give me a chance to tell you what support I need and when I need it,
and I will listen and know when and who can support at the time,
so please understand what support really is.
Support when I need you,
Being told is not a good feeling, being told makes me feel out of control, being told I can’t connect with everyone is limiting me, being told is being out of control,
I need your support and finally understanding,
I need your support so that I don’t walk away in pain when I feel you don’t understand and am low on spoonful energy, and need time to reconvene myself to you, or even when I feel hurt,
even when you don’t understand why I am walking away even for a day or even sometimes longer than that,
It does not mean I don’t love you, and it does not mean I don’t care, it just means I need time because of the way you approach me or the way you understand things about me makes me cringe,
I need your support so that you know the love we give to each other when we all need love,
I need your support.
I know I left you at times, some longer than others, but I need your support, not your telling me, and not your ridiculing me, with easing on sarcasm, and definitely not your abrading me as if I feel like a nothing,
I am a person too even though I am disabled, even with being autistic, or even with my anxiety, or even with my sensory system, or even with my way of understanding the world,
or even with my way of feeling for you,
because I love you, I love all of you,
I love the way everyone loves me.
I am grateful for the love for me.
Support is when my life is not empty, and I have someone to go to talk with about something may be hard to handle at the moment
ultimately giving me the power to make my decision as the decision maker in my life.
I have services that give me my support workers, that give me my broker, that give me an agency too, that give me someone looking over my money I get for my services,
but that does not mean I need to be told, I just have a team of whoever wants to support me any time I need it and give me the time.
I love you, I love everyone because I am loved by all, loved by everyone.
I left you for a reason that left me needing my space away to have enough spoons to deal with you and think about ways you can better support me,
I needed this because you seemed to not understand, you seemed to think you knew everything even without listening to my thoughts, my opinions, my ideas, my creativeness,
and my learning about history and knowing how I feel and what I believe to make the world a better place,
You may not understand how I want to make a better place, you may not understand my art, but I do understand and have a sense of what I want.
While I left you because I felt like everyone left me in the dust without any support without any kind of things I owned before and needed to go back to the family who I needed space from at the time I walked away with you who tried to help me at the time
so I can get my spoonful energy back and reconvene myself to the world,
I know I hurt many people, I know I hurt by not talking that much to first the family in my life, and being silent to all a way long time,
I know I triggered everyone from either leaving without letting anyone know to triggering in many other ways,
when it comes to triggers, we can love and be loved, but there needs to be communication in every relationship especially when communication gives and creates agreements of supported decision making within those relationships I choose to have agreements with,
between me and the people I choose in my life for support and what kinds of things I need for support even as a disabled person with being autistic.
Having support from people means my anxiety is low, means I am in control of what I want regardless, and means everyone understands me, and understands what makes me tick and what doesn’t.
And with that being said, even with bleeding love coming from our veins, it just pushes us closer to the support we all need in our lives.
I hope you understand,
I hope you know I love you,
I hope you know what support really is.
And, most importantly, I hope you know how much I love…
I feel the frustration,
is it normal?
Is it supposed to be passing for norMAL?
WHAT IS dammmit, NORMAL?
OMG…I CAN’T BELIEVE THIS!
Oh my goodness, OMG, Oh my GOD!
NORMAL, what can I say?
NORMAL, it is hard
It’s like very few can pass for it,
yet MANY embrace it.
It’s so very stimulating or in this case,
TRigGERRing to have to pass for norMAL!~~~
especially when I am not NoRMAL,
including my friends who are not NORmal either,
or even whenever I walk down a street
I see MANY struggling to be NorMAl,
NORMAL is a social construction,
it is passing for…
what America wants,
it is passing for…
being non-disabled or NON-NEURODIVERGENT,
also, when EVERYONE is born NEURODIVERGENT,
but only PASS for NORMAL
and embrace NORMALITY
Oppress The MANY citizens out there who CANNOT,
you are NEUROQUEER,
OR even when
you are not one of the BINARY genders
when gender is FLUID and is non-binary,
NOT saying I am non-binary, I AM JUST OPEN-MINDED
to everyone’s gender differences and EVERYONE’s iDeNTitiES,
and the self-determination of being WHO WE ARE INDIVIDUALLY,
and being the person we are MEANT TO BE and ARE in this world.
NOrMaL, what the heck is it,
when it’s all about when WHITE MaLE Christians who created the damn word many years ago,
who wanted EVERYONE to conform to THEM,
and who WANTED everyone to be non-disabled, non-neurodivergent, and labelled by IQ.
AND, who also wanted EVERYONE to look, feel, and think the SAME way,
How NORMAL is that when SO many are different races, of different religions,
of different thinking types, of different emotional types, of different FEeLIngs,
OF different concurrences acting at the SAME time,
OR of different lapses of time splitting in their heads,
and of different genders and differences in disability,
BECAUSE everyone can DO it,
NO one is IMMUNE to think differently, WE are CREATIVE which is WHY normal was made,
which is why things are DiFFerent.
MORE importantly why WE all make MISTAKES especially with TRY(ING) to NORMALIZE America,
and in many CASES NORMALIZE the WHOLE WORLD, but many CANNOT be NORMAL,
MANY cANNOt think NORMAL, many CANnot feel norMAL
because NORMAL is painful especially when someone is disabled,
especially painful when someone is NEURODIVERGENT
when being NeuroDiVERgent is not VERY embraced
and people want to accept NORMAL as the ‘in’ thing as the BRAINS and the one with IQ,
and neurodivergent as OUT, as the ‘OTHER’, and the one that is WEIRD or FREAK or INCOMPETENT or
STUPID or even the re2379427d,
eVERyone is really neurOdivergent, but many seem to discount it, seem to disregard it, or even THINK SAMENESS is the ‘in’ thing,
when EVERYONE is really different,
everyone is really …
CREATIVE, emoTIONal, lEarnING all the time, brainy, INTELLIGENT, gaining WISDOM everyday, has their own WaY of doing things.
while everyone can …
BREAKDOwn, everyone can..
hit rockbottom to only rise to the TOP,
MAKE a MASTERPIECE OR Make an invention OR make a discovery from within themselves that CREATES connection
and CREATES something with their MINDS even when it is just very small BECAUSE it really is VERY BIG for the world,
just like NORMAL was and just the way NORMAL was created
ESPECIALLY when normal is destructive to a human being’s personhood and just when normal can also construct certain elements of life,
because normal is paining and hurting MANY in this world
our peers who are not of the binary genders like you or I,
our peers who are NEUROQUEER
our peers who are a(sexual) or even sexual,
OUR peers who are mixed race, or not of the same race as you or I,
OR the way me and my peers who believe in different religious or spiritual thinkings,
or how many citizens who are disabled, neurodivergent seem to experience the world differently
even when the disability and neurodivergence is autism,
or even when it is cerebral palsy, down syndrome, or many other different developmental disabilities
because having developmental disability is NOT considered normal and is not considered intelligent and
seems to always associate with judgement, always associates with stupidity and incompetence and not knowing what is right or what is wrong,
because in the end, it’s normal, it’s abnormal, it’s just living, it’s just life.
Being developmentally disabled is
being more INTELLIGENT than peers who embrace normality can even fathom,
its’s being more FUN and comical than one can even think about,
AND, is being more empathic and CREATIVE at the same time than any other citizens can even feel and think,
Being developmentally disabled or even have psychiatric disability is a thing, but it does not have to mean the person has to be this normal…
or has to abide by the rules that the leaders of normal created years ago,
Being developmentally disabled and having psychiatric disability is part of being human,
It’s a way that life sets us off, it’s a way to experience the world, and it’s a way of being intelligent differently,
since anyone of us can have psychiatric disability because it’s part of human experiences,
and developmental disability is a thing that happens to many, but not all, as a way to know being human is IMPERFECT,
and being human is MORTAL, and being human, everyone will have different ways to express the genes of the human race,
EVERYONE is GREAT, everyone is GOOD, and EVERYONE thinks different, and MOST importantly NORMAL was just a story or concept created but does not have to be embraced by anyone.
I am male, I am neurodivergent, I am autistiC, I am Jewish, I am spiritual, I am a artist, I am a beginning filmmaker, I am a scholar, I read many books and articles, I am a poet,
I am a person of science, I am many identities, I always have my own mind,
and most importantly,
I am J.
My knowledge is useful,
my life is pure,
my feelings are genuine,
‘normal’ is my misery,
my own normal is a companion,
my trope is believable,
I am a Human being,
I am sanctioned,
i am golden,
I am not your inspiration,
I lead by my own life,
by the way I am,
by the way I am,
even after surgeries,
even after medicines,
even after accommodations
for accessibility in this world,
I am blind,
I am sightworthy,
I feel difficult
in a marginalizing life,
I am refutable,
I am open,
to all open things and bodies,
I close at the open,
I open at the close,
I am a vibrant movable body
moving up and down
through the door,
through my seclusion,
through living through isolation,
though it doesn’t have to be that way,
It does not have to be isolating,
it does not have to be that mind-set,
It’s something I have to furiously open
on my own with or without leaving doors closed,
without or with closing on me,
with or without closing on you,
Life is like that!
so, it is time for a bunch of tears,
so, it is time for a craving of me,
and time to show that
regardless what or who the person is,
it’s about what humanity really is,
and it’s about being the ideals of what we are,
because in the end,
we have to accommodate others and be accommodated for who we are,
if we don’t do that
we are nothing and wind up with nothing,
so it’s all about what we want,
and it’s all about who we are,
to generate everything
in the institution of life
and the de-institution of what we want society to be for life
as a whole,
do we work on being who we are?
or, do we have to work on what society wants instead?
and, do we work on what we believe?
or, do we work on how to work with other people’s beliefs instead?
so it’s all that we have
and all that we need to work on
to live the life we get
and the life we hope for.
(A poem inspired by many readings I have read all throughout my life. I started writing this poem when I read Merri Johnson’s Girl in need of a Tourniquet and Bram Stoker’s Dracula this semester at CUNY SPS.)
My humanity is there,
I set off to the goal,
I pain, I hurt, I erode
through sudden Goethe,
I deserve the ending,
I sacrifice the beginning,
I figure my mind.
I liberate my flamboyance,
I continue to the
connotation of trials,
of tribulations of
the non-binary world
which is really binary,
of everyone in motion,
love is darkness,
love is spiritual,
love flips houses
to go, to out, to live,
I sacrifice my mind,
I feel the inner monster,
I live the outer inner body
I am a person,
being virtuous, being good,
being a good guy,
being a good gal,
being a good person,
being the body of dense creation,
my creator made me,
he made everyone,
I am not understood,
my good intentions of bad moods and emotions.
I love animals,
I love my love,
Is there really a normal?
What is normal?
Compulsions of normal,
acting on you,
disliking on me,
fairly with justice.
Deviating toward death,
WHAT IS DEATH?
WHAT IS LIFE?
Death, Violence, Deviant, or NOT,
disgust or whack,
Beetle BeetLe BEETLE
JUICE JUICE JUICE,
Everywhere I go,
Everywhere I look,
I see my future,
I find myself in the present,
I walk through the curtain,
I rise from my chest,
and I have a past in the background.
Everywhere I go,
Everywhere I see,
Everywhere I want to be,
It really is the light approaching from the darkness
in the distance,
and everywhere I go, everywhere I look,
AND EVERYWHERE I HIDE,
I SEE my dreams becoming REALITY,
I SEE my life BECOMING A THING!
I SEE that NOTHING WILL STOP ME!!!!
BECAUSE I am going to SUCCEED,
I AM GOING TO do what I WANT,
I AM GOING TO WORK ON MY OWN,
building my CAREER,
building my CREATIVITY,
BUDDING my LIFE into reality,
AND LIVE THE LIFE I WAS MEANT TO LIVE.
Forget about darkness,
forget about what you think,
forget about your thoughts,
BECAUSE the only thoughts that matter
are the thoughts IN MY HEAD,
and support ME from that.
It’s probably what Bram Stoker meant,
or even the Girl in need of Tourniquet needed,
or what Audre Lorde needed,
or even what Ron Kovic needed as Born on the Fourth of July,
It’s all about living until our last breath,
and it’s all about living and ENJOYING every minute of it
with EVERYONE supporting each other WITHOUT telling or saying anything,
because we all have our OPINIONS,
WE all have our SEPARATE BELIEFS,
AND WE ALL HAVE WHAT IT TAKES
to do what we WANT and NOT what OTHERS say.
Nothing about us, without US,
I say, I say.