Tag Archives: eugenics

A Poem Called “Autistic Rage”

Autistic Rage,

(Written after reading the article Blind Rage, in response to Helen Keller, by Georgina Kleege)
(This poem is something that is in the works for a poetry anthology I am doing for class for my masters program at CUNY. I am working on doing annotations for each part of this poem that requires an annotation which is why there is numbers associated with certain lines as well as 4 other poems I chose to annotate as well. I also used gender neutral pronouns so as to not identify. Since my natural tendency in writing is short bursts of words rather than longer sentences from my own Autistic language which is my own Autistic Poetics and my professor likes that. And, I will be filming this poem this week for my non-credit film class.)

by theamazinJ

My feelings of disability 1
come from the distinction of an honor,
but to many a tragedy,
from the way we see people generally,
to the way we converse,
from Kanner’s views of autism,2
to Asperger’s views of psychopathology, 3
to the beauty of movement
from the ideas of Tourette’s4
spilling out my gut,
without my insincere moment,
from the way Elephant Man5
physically felt stigmatized
and ostracized to the
way my moment of
my life lives.
To the way I fill the moment
of my influence,
to the moment of
how the intersection of
autism and Tourette’s
go hand in hand
even with dyslexia6
with the acts of disability
in American culture.7
My life is good,
stop and wonder,
my life is good,
I don’t care what you say,
I hurt,
I pain,
from your misunderstandings,
from your lack of empathy,
of your arrogance,
of your immaturity,
of your future of me one day,
when I surpass you.
I hurt,
I pain, I forgive,
I forget,
I argue,
I say,
Get Out,
Get Real,
Get images,
Get going,
I am me,
So get the hell out.

My disability of autism
is interesting.
My disability of anxiety 8
is a swirl of energy and rage
to be controlled.
My disability of movement
makes me move differently
than I am and you are.
I move with ease.
I move with fluttering hands and feet.
I fly my hands in the sky with flapping,
I shadow my feeling in the darkness.
I crawl into a hole.
My disability is discomforting.
My disability is not accepted.
I feel over anxious from
the already anxiety I feel
from society.
I feel I don’t love who I am
because I am not accepted
under this social standard, 9
this social construction society created, 10
and under every one telling me without
supporting me.
And, if I don’t want to be told,
that I am not supported by anything.
It’s control.
It’s life giving me serene beauty without
touching the beauty.
I love things, I love animals,
I always and sometimes love people.
I feel conglomerated
by society by the people
around me.
I need to be forgiven for I am,
yet, everyone wants
to change me for who I am right now.
I am, right now.
I cannot just be
I cannot just do
I cannot just say
I want to say
I want to do,
but in reality
i am unforgiven.
I am forgettable,
i am not working
like the way
They is worthy, 11
or
They thinks is worthy,12
or
They thinks they is the Queen,13
or
They
notes them and with pride,14
or
Them
exacerbates who they is
in a low key manner,15
or
They seems better
but really is not,16
or
They moves in to build peace
but cannot really17
or
They talks about sex
but takes it too far18
or
They passes with ease
causing more pain,19
or
the way Them projects who they are,20
or
Them uses their anger to shell out to others,21
or
They thinks the world revolves around them,22
or
how they thinks they can speak with AAC
even saying how proud they are of autism,23
or
even the way they takes on
how others feel and does not know their own,24
or even the way they attempts to
say Autistic men are more likely to be pedophiles
from an article from 2013,25
or how they thinks they can find causes
which they thinks can take away the pain
and cure autism even though that just
causes more pain in order to pass
and not be real,26
or even the way the anti-vaccine movement
thinks they knows everything, but knows nothing.27
or how every Autistic leaders feel,28
or autism researchers think about Autistics,29
because Autistic or not, I feel
humanity is real,
but humanity sucks
from the way we are all judged,
but humanity is not normal,30
and normal is done,
normal is succinct,
normal is seemingly joyous but
with eagerness to feel pain,
to feel suffering, to feel like less than,
but most importantly
feeling jerky,
feeling like a marshmallow,
feeling geeky,
feeling like I don’t belong
and everyone can move me
in the direction they want,
and my anxiety soars everyday,
every night,
and cannot stop
because everyone tells me and
no one wants to be told
and no one supports, but support is
good is better and helps a person
achieve self-determination,
achieving identity of largeness in my hands,
my long legs ache, my arms are in pain,
and I just feel like embarking on something special
as every other human being
is special, is unique,
and not more, not less,
and a part of the life
we live today.
It’s the way Neurotribes was written31
and even with In A Different Key,32
because Autistic history is real33
when it is really
the history of the Human race.34

(Happy Autism Acceptance Month 2017!)

The poems in order will be :

1) Autistic Rage poem
2) I am not retarded poem
3) I open at the close poem
4) Tyrant and Martyr poem
5) Poem of Apologies

(Now each poem will have annotations based on the readings I read this semester with other readings (books, articles) I have too.)

A Poem Called “Nothing About Us”

Nothing About Us,

by theamazinJ

Everywhere we go,
everywhere we look,
We see destruction,
we see walls being built,
we see the development of institutions,
we see the lack of community building,
everywhere we go we see Donald Trump’s face
in place of the faces from the 1930’s,
where in 1927, Oliver Wendell Holmes
from the U.S. Supreme Court
finished what was started in America
where the dark history of America
helped stir the pot in Germany back then,
where even today
many people still keep in mind
what American History is really about,
keeping the rich richer,
and about building a fascist state of mind,
while The U.S. Supreme Court in 1927
from Buck Vs. Bell
secured a statement
that is still in everyone’s minds today
stirring the message over and over in their heads.
The message was clear, the message was disturbing,
and the message was concrete,
when Holmes said “Three Generations of Imbeciles were enough…”
It allowed the preconceived notion
that the medical model of disability will dominate,
it also allowed Americans
to build a war against each others
against society
and against disability
while at the same time
trying to prevent disability
and not only that,
but eventually labeling
everyone ‘high’ functioning or ‘low’ functioning,
and even establishing medical charity organizations
to this day
to use this rhetoric from Buck vs. Bell
even more than they had done before
to establish a society of sameness,
a society of perfect bodies,
a society where there would be lethal forced euthanasia,
a society where there would be eradication of certain peoples,
and a society segregating people
by class, by gender, by race, by sexuality, by ability,
and by religion.
This is the society Donald Trump wants,
this is the society that Paul Ryan hopes for,
this the society Mitch McConnell strives for
and what Mike Pence asserts every day.
We need to stop this from happening,
we need to embrace every part of humanity
every day of our lives,
with supporting each other,
and encouraging everyone
while remembering
why we are here on this planet,
and how we can rely on each other everyday for support.
Society is interdependent,
we are not finches,
we cannot take Darwin literally when he said
it’s ‘Survival of the Fittest’,
because humanity is different,
humanity is supported,
we support one another,
we support other animals,
we support other kingdoms of taxonomy,
we support the climate of this great planet,
if someone is sought out to destroy this diversity
then we need to sought out justice to the people
wanting to harm and wanting to do this,
because we need to construct
a world of love for this planet
and everything and everybody that is on it,
no one can take that away
and no one can segregate or harm another,
in the end,
its our duty to take care of one another
regardless of who or what we are,
regardless of what kinds of supports
the person needs to achieve their own self-determination,
because we cannot be influenced by
Donald Trump’s establishment or Paul Ryan’s anger or Mitch McConnell’s fury,
or even Mike Pence’s ignorance,
To be truly United,
we need to include everyone,
we need to build community,
because disability is part of the human experience,
but is also part of living organisms,
and we need to remember,
Nothing about us, without us
is Nothing about US.
Everyone supporting one another, is not controlling anyone regardless,
that’s what democracy is really about.

A Poem Called “The Institution of ‘Trump'”

Trigger Warning: Please read with caution. Trump is created bad ideas and this poem may trigger many. Do please read with caution.

The Institution of ‘Trump’,

by theamazinJ

Trump, Trumponian Era is beginning soon,
the dark ages is beginning way too soon once again,
the ages of ignorance, the ages of backwards history,
an ages of no civil rights laws for everyone
is the beginning of Trumponian Era.
A scary time for me, a scary time for you,
and a scary time for everyone.
It’s going to be scary because
a age of ableism,
a age of racism,
a age of misogyny,
a age of heterosexism,
a age of transphobia,
a age of binary gender,
a age of anti-semitism,
a age of islamophobia,
a age of institutional thinking
for any one who is different than the status quo,
re-creating institutions for disabled people
from cognitive to learning to psychiatric to physical disabilities
to segregation without inclusion,
without The Americans with Disabilities Act and Universal Design
for everyone to live their life however they want to live,
a age of conversion therapies
to change everyone’s brains from the way an individual citizen thinks and feels
regardless how the person think and feel,
a age of creating clones of people,
a age of no creative thinking or inventive thought,
an age of being afraid to express ourselves the way we feel,
an age of black and white thinking and polarization.
we are about to enter an age of searching to create the perfect human being once again
who are white, anglo-saxon, heterosexual, non-disabled males,
where we are leaving behind an age where Susan B. Anthony, Martin Luther King Jr, Malcolm X, the Black Panthers, Ed Roberts,
and many other activists fought hard for women’s rights, the Civil Rights Acts of the 1960’s,
the Section 504 of Rehabilitation Act, where Free Appropriate Public Education Act for All was passed,
where the Individuals with Disabilities Education Act was passed, where De-Institutionalization began over 40 years ago,
where the Sexual and Gender revolutions happened, where the Early Intervention Laws of the 1980’s began,
where the independent living movement got started,
where The Americans with Disabilities Act was signed,
where the Autism CARES Act was signed and passed,
and now Trumponian Era will try to erase all that and the history behind it,
Instead we need to support getting the Disability Integration Act started,
we need to ensure everyone is respected
regardless of gender, sexuality, disability, race, and religion.
We need to ensure human rights for all,
and we need to do this before it is too late.
We need to remember eugenics did not work,
we need to remember the word ‘genetics’ is similar to ‘eu-gen-i-(ti)cs’,
we need to remember what science means to all of us,
We need to remember to be open to everyone,
away from another age of binary thought,
away from a President-Elect who is too ignorant and too emotional
to think everything through as our soon to be President.
We need to pop the bubble Trumponian Era is trying to create,
we need to cure ourselves from the institution of Trump
who does not want to support disability and difference,
we cannot build walls around anyone,
we need to build bridges around the world,
to ensure we create the justice everyone always wanted,
to ensure everyone can live together,
to ensure everyone is included,
to ensure public education is free and appropriate for every child,
to keep the Affordable Care Act Obama signed,
to build supported decision-making for everyone,
to secure our minds to think the way we feel about inclusion,
to feel about whoever we love in this world,
to communicate our thoughts however we express ourselves
through our physical voice or through sign language or through assistative technology.
To ensure that human rights means disability is respected part of the human experience
because disability is a part of the human experience.
We need to secure self-determination and the choices everyone gets to make every day.
Everyone deserves the right to follow their hearts and follow whatever dreams they have,
because in the end,
we need to all march this week.
We need to march for our revolution,
we need to march for our freedoms that many past civil rights leaders and our founders created
with many of the current civil rights leaders in all of us,
and we need to march for justice!
That is all from a activist fighting with everyone!

A Poem Called “Unfollow the Leader, Follow the Underdog”

Unfollow the Leader, Follow the Underdog,

by theamazinJ

Unfollow the leader,
Unfollow eugenics,
Unfollow the leader,
Unfollow evidence based and non-evidence based,
Follow your own research,
Unfollow research for causes to change DNA and genes,
Unfollow sterilizations,
Unfollow people who see only problems in people,
Unfollow the leader,
Unfollow those who don’t want to work as a team,
Unfollow the leader,
Follow passion,
Unfollow money and power and greed,
Unfollow the leader,
Unfollow inspiration,
Unfollow martyrs,
Unfollow people who create martyrs,
Unfollow bullies,
Unfollow Donald Trump,
Unfollow bigoted and/or flip flopping behaviors,
Unfollow everyone who is lost in their own agendas,
Follow the leader,
Follow dignity,
Follow respect,
Follow acceptance,
Follow mutations,
Follow differences,
Follow your mind wandering into space,
Follow your thoughts brainstorming something awesome,
Follow your creations to invent,
Follow your artistic foundation to explore your intuition for yourself and others,
Follow your love for people and create social justice,
Follow your passion for activism to close down and reform society,
Follow your dreams and everything will happen,
Follow your favorite team in sports even though they may be the underdog,
The leader means nothing,
The leader is nothing,
The leader is a cult,
The leader is not real,
The leader is the overachiever,
The leader is not a role model,
The leader thinks they are an inspiration when inspiration does not exist,
The leader is non-motivational,
We need a team,
We need community support in helping one another,
We need our families,
We need our friends,
We need non-conformity to what society does not say,
because society really does not know what living is.
We have growing pains with leaders,
We have false hope with leaders,
We have nothing when we follow a leader,
Unfollow your wishes,
Follow your self,
Follow your instincts,
and most importantly follow the underdog
who can bring about change.

Supporting the Decisions Everyone Makes No Matter What Varying Impairments Anyone May Have including Autistic people

Supporting the Decisions for Everyone No Matter What Varying Impairments Anyone May Have Including Autistic People

Autistic people have rights just the way everyone has rights to be a leader of their life; Autistic people are thinking the way they want to think and are also human beings too with our own mind. Autistic people have feelings often feeling for others and have feelings that often feel pain by many other people who do not understand us. Autistic people grow up at different paces while others may just grow at the same pace as their physical age. Because many Autistic people grow at different paces, we are often thought of as less than human, deviant from the norm, and due to our impairments many in society look down upon us thinking we do not have a mind of our own nor are we able to make logical decisions about the life we want.

Though, Autistic people are vulnerable, and depending on the impairments, depend on how vulnerable the individual will be. It does not matter if the person is less impaired, they can be more vulnerable. Just because Autistic people are vulnerable does not mean we are not our own person. May be so many think that way because Autistic people feel so many emotions at once, that at times we either do not know how to use our emotions scaling back inward or use our emotions too much being considered to be over-emotional, rageful, and illogical. Whichever way Autistic people are, we are misunderstood by society as a whole, thus society is misguided in the way everyone should think of Autistic culture and human society in general.

Despite all of the misunderstandings and misguided ideas from years of a perception that someone with cognitive impairments is not capable, some in society are finally learning today what person centered really means. Yet, many do not presume competence. The tragedy of the thinking that Autistic people don’t have a mind capable like others has created in the past, a blood boiling battle scene between Autistic people and many others who striving for a way of conformity. Lately, the people who get the most credit for starting this battle scene is the organization, Autism Speaks. However, they are not the only ones who need to take responsibility for this battle scene between Autistic and non-autistic.

Many people before Autism Speaks have contributed to this blood boiling war between Autistic people and others who strive for perfection. Unfortunately, the mainstream media has contributed to this as well by mostly taking the sides of people who are against Autistic culture. This war against Autistic people is really a war against humanity and human nature, yet it should not have polarized thinking. The battle to fight for either correcting the genome from disability to embracing the genome and realizing cognitive disabilities like the way Autistic culture is, is something that needs to be accepted.

How far do we go to changing the human genome? Is it our right to change the genome that mutates and changes randomly over time? Who gets to say which parts of the genome are bad or not? And, is the human genome really a bad thing as many medical researchers are trying to correct it to make a perfected flawless human being? Is eugenics or genetic counseling really needed?

My feelings as a person who is Neurodivergent from outside the norms of society and as an Autistic person leads me to believe that I often feel like pushing to be who I am while getting pull back from society to make me the same as how others are. The fine line between autonomy and being who we are versus depending on others to conform to the standards of society is enormously thick, yet we need to pull one way and push another to be included in the community. Autism Speaks as an organization has been through a rough war because many people feel their misguided thinking for almost 12 years has been too hurtful to many who feel they want to embrace who they are regardless. This makes me feel that not just Autism Speaks, but everyone needs to re-think what we have done in the past that preyed on too many people and in some ways continue to do so.

Our society created the mindset of the perfect mind and body back when Francis Galton created the word ‘eugenics’ and the world decided that between Darwin’s evolutionary theory and his cousin, Galton and his creation of the word ‘eugenics’, that everyone became instantly obsessed with the human genome. To perfect the body and mind is to deny disability and separate from the imperfect human body to create a monster master race of the human genome that everyone will strive to be. This monster master race that everyone has been striving for since the late 19th Century, created the thinking that Hitler wanted to first exterminate people with varying degrees of impairments to eventually exterminating certain races, religions, and other peoples in the Holocaust because he thought society could do away without these differences.

I am sorry to say, but the world created the way Hitler eventually started the Holocaust when he thought about how to perfect the human genome, race, and religion and whether we like it or not. We create people like the way Hitler was in the world. However, this is not the only thing we need to take responsibility for, we also need to take responsibility for many other things throughout history both in our private lives and in the public.

Everyone is vulnerable in society, but we need to use that in a different way then the way we have been being vulnerable in the past. Supporting decisions that individuals make in the world is figuring out what will affect both the individual and society in a positive way. It is not about conforming to others, it is about being a leader of your own life. We just need to be vulnerable in the way we affect others and ourselves in the decisions we make in our life.

Much of society has been vulnerable to perfect a human genome that is constantly mutating, constantly changing, and constantly moving around in our bodies just like the universe is constantly moving. We can possibly change that, but we cannot stop that. Many people are obsessed with perfecting (and perfected) bodies and minds. However, perfecting a body and mind, is a very fine line between what we think is autonomy and what we think we need to depend on others for help. As society builds communities, we are connected to each other regardless of the way we identify through race, religion, sexuality, gender, or disability cultures. The way we represent ourselves is independent of being human because being human really means that we need to support one another regardless of what we want to influence since we all go through the same trials, tribulations, and rewards in life to form our identities and ideas.

Supporting decisions and the way we as individuals experience life is important. The person centered approach most are beginning to learn now, is something that is a part of human nature since the beginning of time. Yet, we have in the past, and in some ways still do, only respect the decisions some people make, while others we felt could not make decisions at all and could not think on their own. This is still is still happening today.

We need to give everyone the tools to decide and think about what they want in their life on their own even if it can be difficult with some individuals. This thinking presumed (and in some ways continues to presume) many people that their decisions are illogical and not right. Making decisions for our life depends on what kinds of decisions we are making. Some decisions we can decide on our own, but many other decisions we need the support from people we feel can assist us especially those close to us in making the best decision for making our life a success. There is always someone we can speak to that can help weigh the pros and cons of a decision in our life. For those who have more severe impairments, we need to help them as well to make their own decisions that are right for them regarding what the individual wants.

Whenever anyone makes a decision, it not only affects us, but it also affects everyone close to us in that decision, and in some ways can affect the rest of society as well. For example, when any one decides that they want to change the way their child is, they are making a conscious decision that will affect the way their child will feel about themselves and toward others as well. These decisions we make affect us individually in many different ways. If a child rebels against their parent’s decision to change who they are, then the child and the parents must take responsibility for their actions.

Deciding on changing the way a person is, also changes the way everyone feels about themselves. It is important to attribute every decision we make to the way we think about others and ourselves in our life. When we think about who we are as a person, we think about where we came from, and the people in our life that affect what we think. Sometimes what we think can hurt who we are and/or other people especially those close to us.

Though, the way we think depends on our experiences. For example, if we spitefully act because we think we want to hurt someone emotionally or physically, we essentially hurt ourselves in the process. The golden rule still stands to do good to others always, however, sometimes what we think is doing good in our mind, may be hurting others without even thinking it through. This is definitely true when Galton created eugenics that eventually became the study of genetics that led to the thoughts many people have had since then that has hurt society.

Autism Speaks may not have been thinking through in the past how they are helping Autistic people in society may not be actually helping Autistics everywhere, but they hopefully are starting to learn. However, every non-profit organization has been thinking irrationally including the Autistic Self-Advocacy Network and many other Self-Advocacy organizations that also seem to not think about the way everyone feels. Yet, the self-advocacy and the Neurodiversity movements that were started by self-advocates helped (and continues to help) the parent movement begin to understand things every day.

Every organization has their own agenda to what they think they are doing is right. Yet, everyone and every organization, through medical charity or self-advocacy, cannot know exactly how everyone feels because we all have our own thoughts and experiences, that are different than others and ourselves.
When thinking about supported decision-making, everyone thinks about the way they want to live their life. For example, an individual may choose a different way of living than many other people do on an actual daily basis, but that does not mean that individuals in society cannot live a quality life. A quality life is subjective to what an individual actually feels they want in their life. No one can suggest a better quality of life or social skills to make others conform to a society that is not universally designed for everyone. We need to accept and protect the boundaries we individually make ourselves to the way others set their boundaries too. We need to remember who the person is as an individual and how individuality really is what everyone wants as a single mind of their own.

Society can lead to too much frustration because of a social construction of conformity to make everyone the same, as followers. Some may be more frustrated with who they are than others because their experiences with how society treated them or certain individuals who treated them in the past made them feel particularly unjustified and unaccepted living their life. This responsibility is what everyone needs to fully grasp and think about how to create a unified world with justice served.

Everyone has their own way of living. Everyone has their pride and joy that makes them feel good about who they are. Everyone does what is right for them, but no one has a right to tell a person that the way they are living is not quality of life and not conforming. Conforming is living in a world that is universally designed to fit everyone even if society does not understand that type of conformity. Many times some impairments create situations that make a person feel they cannot function enough and in fact need accessibility and universal design to help them get by or even thrive in society. So, why cannot we create universal design in everything we do in society so that everyone feels that they can live their life the way they know best? That is a good question because our society has always conformed to the idea that its citizens are too vulnerable and need to be corrected (or fixed) to fit in.

The world is a tough place to live in. Autistic people can be vulnerable, mostly, everyone is different to the person standing next to them, and simultaneously we can all be vulnerable to what others are thinking. However, it does not mean as individuals that vulnerability is a weakness. Everyone is an individual who can think on their own and are susceptible to others in the way many think.

Human culture is defined; all of us think whoever is standing out in that moment yelling their voice the loudest and often ranting a lot, is the leader. This is not true, we are all leaders of our own life, and self-directing, as we all need to believe that we are happy with who we are and connecting with others. The vulnerability everyone has is just a strength we have that we need to show others that we need support. So, we all get to support the decisions we all make in the best possible life we all want, including Autistic people.

In order to think through how to create more positive experiences with others in society, we can help by providing to strive for universally designing a world that everyone can live in with dignity, respect, getting their voices heard, and able to function with everyone else around them no matter what. Everyone can lead their own life whatever way they want to live. We need to do better and we need to ease the pains of so many people especially in our society, including Autistic and non-autistic alike.