Tag Archives: civil rights

Citizen’s Vulnerabilities and the Rights of All in this Society

Autistic people have rights just the way everyone has rights to be a leader of their life; Autistic people are thinking the way they want to think and are also human beings too with our own mind. Autistic people have feelings often feeling for others and have feelings that often feel pain by many other people who do not understand us. Autistic people grow up at different paces while others may just grow at the same pace as their physical age. Because many Autistic people grow at different paces, we are often thought of as less than human, deviant from the norm, and due to our impairments many in society look down upon us thinking we do not have a mind of our own nor are we able to make logical decisions about the life we want.

Though, Autistic people are vulnerable, and depending on the impairments, depend on how vulnerable the individual will be. It does not matter if the person is less impaired, they can be more vulnerable. Just because Autistic people are vulnerable does not mean we are not our own person. May be so many do think that way because Autistic people feel so many emotions at once, that at times we either do not know how to use our emotions scaling back inward or use our emotions too much being considered to be over-emotional, rageful, and illogical. Whichever way Autistic people are, we are misunderstood by society as a whole, thus society is misguided in the way everyone should think of Autistic culture and human society in general.

From all of this misunderstandings and misguided ideas from years of a perception that someone with cognitive and sensory impairments is not capable, not competent, some in society are finally learning today. The tragedy of this kind of thinking has created this between Autistic people and the rest of society. There are a lot of people who need to take responsibility for these actions.

Many people before Autism Speaks have contributed to this between Autistic people and the rest of society. Unfortunately, the mainstream mass media has contributed to this as well by conforming to the ideas of this subjective interpretation. Many people are suffering from a society that lacks understanding. This war against Autistic people is really a war against humanity and human nature. The battle to fight for either correcting the genome from disability to embracing the genome and realizing cognitive disabilities like the way Autistic culture is, is something that needs to be accepted just as many other neurodivergences need to be accepted too.

How far do we go to changing the human genome? Is it our right to change the genome that mutates and changes randomly over time? Who gets to say which parts of the genome are bad or not? And, is the human genome really a bad thing as many medical researchers are trying to correct it to make a perfected flawless human being? Is eugenics or genetic counseling really needed?

My feelings as a person who is Neurodivergent from outside the norms of society and as an Autistic person leads me to believe that I often feel like pushing to be who I am while getting pull back from society to make me the same as how others are. The fine line between autonomy and being who we are versus depending on others to conform to the standards of society is enormously thick, yet we need to pull one way and push another to be included in the community. Autism Speaks as an organization has been through a rough war because many people feel their misguided thinking for almost 13 years has been too hurtful to many who feel they want to embrace who they are regardless. This makes me feel that everyone needs to re-think what we have done in the past.

Our society created the mindset of the perfect mind and body back when Francis Galton created the word ‘eugenics’ and the world decided that between Darwin’s evolutionary theory and his cousin, Galton and his creation of the word ‘eugenics’, that everyone became instantly obsessed with the human genome. To perfect the body and mind is to deny disability and separate from the imperfect human body to create a monster master race of the human genome that everyone will strive to be. This monster master race that everyone has been striving for since the late 19th Century, created the thinking that Hitler wanted to first exterminate people with varying degrees of impairments to eventually exterminating certain races, religions, and other peoples in the Holocaust who he thought society could do away with. I am sorry to say, but the world created the way Hitler would eventually think about how the human genome, race, and religion whether we like it or not. We couldn’t control how some people would interpret this thinking even today. However, this is not the only thing we need to take responsibility for, we also need to take responsibility for many other things throughout history both in our private lives and in the public.

Everyone seems to not understand that trying to perfect a human genome is trying to perfect something that is constantly mutating, constantly changing, and constantly moving around in our bodies just like the universe is constantly moving. We are human beings so I understand why many people are obsessed with perfecting (and perfected) bodies and minds. However, perfecting a body and mind, is a very fine line between what we think is autonomy and what we think we need to depend on others for help. As we are Human beings who live in this world, we are connected to each other regardless of the way we identify through race, religion, sexuality, gender, or disability cultures. The way we represent ourselves is independent of being human because being human really means that we need to support one another regardless since we all go through the same trials, tribulations, and rewards in life.

Supporting decisions and the way we as individuals experience life is important. The person centered approach most are beginning to learn now, is something that is a part of human nature since the beginning of time. Yet, we have in the past, and in some ways still do, only respect the decisions some people made, while others we felt could not make decisions at all and could not think on their own. We need to give everyone the tools to decide and think about what they want in their life on their own. This thinking presumed (and in some ways continues to presume) many people that their decisions are illogical and not right. Making decisions for our life depends on what kinds of decisions we are making. Some decisions we can decide on our own, but many other decisions we need support from people who can help us choose in making the best decision our life. In the end, the final decision is ours.

Whenever anyone makes a decision, it not only affects us, but it also affects everyone close to us in that decision, and in some ways can affect the rest of society as well. For example, when any one decides that they want to change the way their child is, they are making a conscious decision that will affect the way their child will feel about themselves and toward others as well. These decisions we make affect us individually in many different ways. If a child rebels against their parent’s decision to change who they are, then the child and parents must take responsibility for their actions. Deciding on changing the way a person is, also changes the way everyone feels about themselves. It is important to attribute every decision we make to the way we think about others and ourselves in our life. When we think about who we are as a person, we think about where we came from, and the people in our life that affect what we think. Sometimes what we think can hurt who we are and/or other people.

Autism Speaks may not have been thinking everything through in the past how they are helping Autistic people in society may not be actually helping Autistics in society, but they are learning over time slowly. Every organization has their own agenda to what they think they are doing is right. Yet, everyone and every organization, through medical charity or self-advocacy, cannot know exactly how everyone feels because we all have our thought process and experiences that are different than others.

When thinking about supported decision-making, everyone thinks about the way they want to live their life. For example, an individual may choose a different way of living than many other people do on an actual daily basis, but that does not mean that individual is not living a quality life. A quality life is subjective to what an individual actually feels they want in their life. No one can suggest a better quality of life or social skills to make others conform to a society that is not universally designed for everyone. We need to remember who the person is as an individual and how individuality really is what everyone wants as a single mind of their own.

This leads to too much frustration because of a social construction of conformity the mainstream media has used every day. Some people may be more frustrated with who they are than other people because their experiences with how society treated them or how individuals who treated them in the past made them feel particularly unjustified and unaccepted living their life. This responsibility is what everyone needs to fully grasp and think about how to create a unified world with justice.

Everyone has their own way of living while having their pride and joy that makes them feel good about who they are. Everyone does what is right for them, but no one has a right to tell a person that the way they are living is not quality of life. Many times some impairments create situations that make a person feel they cannot function enough and in fact need accessibility and universal design to help them get by or even thrive in society. So, why cannot we create universal design in everything we do in society so that everyone feels that they can live their life the way they know best? Our society has always conformed to the idea that its citizens are vulnerable and need to be corrected to fit in, not in their natural way of living.

The world is a tough place to live in. Autistic people can be vulnerable, everyone is different to the person next to them, and simultaneously we can all be vulnerable to what others are thinking. However, it does not mean as individuals that vulnerability is a weakness. Everyone is an individual who can think on their own. Human culture is defined; all of us think whoever is standing out in that moment yelling their voice the loudest, is the leader. This is not true, we are all leaders of our own life.

In order to think through how to create a less vulnerable society, we can help by providing to strive for universally designing a world that everyone can live in with dignity, respect, getting their voices heard, and able to function with everyone around them no matter what. Everyone can lead their own life whatever way they want to live. We need to do better and we need to ease the pains of so many people, including Autistic and non-autistic alike.

A Poem Called “A Serene Beautiful Path”

A Serene Beautiful Path,

(A poem inspired by many readings I have read all throughout my life. I started writing this poem when I read Merri Johnson’s Girl in need of a Tourniquet and Bram Stoker’s Dracula this semester at CUNY SPS.)

by theamazinJ

My humanity is there,
I set off to the goal,
I pain, I hurt, I erode
through sudden Goethe,
I deserve the ending,
I sacrifice the beginning,
I figure my mind.
I liberate my flamboyance,
I continue to the
connotation of trials,
of tribulations of
the non-binary world
which is really binary,
of everyone in motion,
love is darkness,
love is spiritual,
love flips houses
to go, to out, to live,
I sacrifice my mind,
I feel the inner monster,
I live the outer inner body
of humanity,
monstrous,
man,
woman,
person,
person?
Person!
I am a person,
being virtuous, being good,
being a good guy,
being a good gal,
being a good person,
being the body of dense creation,
my creator made me,
he made everyone,
I am not understood,
my good intentions of bad moods and emotions.
I love animals,
I love my love,
Is there really a normal?
What is normal?
Compulsions of normal,
acting on you,
disliking on me,
fairly with justice.
Deviating toward death,
WHAT IS DEATH?
WHAT IS LIFE?
Death, Violence, Deviant, or NOT,
disgust or whack,
Dracula,
Dracula,
Dracula,
Beetle BeetLe BEETLE
JUICE JUICE JUICE,
Everywhere I go,
Everywhere I look,
I see my future,
I find myself in the present,
I walk through the curtain,
I rise from my chest,
and I have a past in the background.
Everywhere I go,
Everywhere I see,
Everywhere I want to be,
It really is the light approaching from the darkness
in the distance,
and everywhere I go, everywhere I look,
AND EVERYWHERE I HIDE,
I SEE my dreams becoming REALITY,
I SEE my life BECOMING A THING!
I SEE that NOTHING WILL STOP ME!!!!
BECAUSE I am going to SUCCEED,
I AM GOING TO do what I WANT,
I AM GOING TO WORK ON MY OWN,
building my CAREER,
building my CREATIVITY,
BUDDING my LIFE into reality,
AND LIVE THE LIFE I WAS MEANT TO LIVE.
Forget about darkness,
forget about what you think,
forget about your thoughts,
BECAUSE the only thoughts that matter
are the thoughts IN MY HEAD,
and support ME from that.
It’s probably what Bram Stoker meant,
or even the Girl in need of Tourniquet needed,
or what Audre Lorde needed,
or even what Ron Kovic needed as Born on the Fourth of July,
It’s all about living until our last breath,
and it’s all about living and ENJOYING every minute of it
with EVERYONE supporting each other WITHOUT telling or saying anything,
because we all have our OPINIONS,
WE all have our SEPARATE BELIEFS,
AND WE ALL HAVE WHAT IT TAKES
to do what we WANT and NOT what OTHERS say.
Nothing about us, without US,
I say, I say.

A Poem Called “Society Meets the Activist”

Society Meets the Activist,

by theamazinJ

One day,
a long time ago,
in a far off place,
society met an Activist,
the first of their kind.
The Activist spoke out against everything society stood for,
I mean, everything, literally everything,
Talking about society’s social construction,
talking about society’s discrimination,
even talking about society’s lack of accommodation,
and when the shit hit the fan even more,
society’s idea of passing rather than being true to ourselves.
The Activist turns 20, then 30, then 40 and so on,
and every time the Activist says something,
they are bullied into silence,
they are told they are fake,
they are told to be quiet and let society just be,
they are told to not be loud and proud,
they are told to take a vacation or just leave society for good,
everywhere the Activist goes,
he wants to make a difference,
to show the society what Human dignity means,
what Human respect means,
and the ways everyone needs accommodating,
the way society can be accessible if they even try,
A long time ago before the first of the month,
society jumped in to vote for a sloth,
a man who would fight Activists,
a man who would say the work Activists have done was fake,
a man who created the term Fake News,
a man who marked war against the world,
a man who created fights between himself and every minority group
including the disability minority group,
especially those people who think and play and move and live differently than him,
a man who is a supremacist,
a man who hates Activists, but then calls himself an Activist for doing what he does,
Activists have gotten criticism for the work they do
and even from the very first Activist a long time ago
in a galaxy far far away,
because being an Activist is tough,
being an Activist is one of the hardest things anyone can do,
Activists make societies uncomfortable,
Activists make the leader of any society go crazy,
Activists speak out and then get hashed by society,
Activists ignore society’s words,
until the Activist actually passes on,
then everyone praises the Activist who spoke out,
and a day or memorial becomes real for the Activist who passed on
to one day everyone quoting them
even when everyone fought against the Activist while alive,
even when everyone took a stand that they would never do it,
however, the Activist took a stand, and now everyone listens,
and now, everyone sees what they said,
finally in the end,
The Activist looks down upon the society from the heavens above,
noticing this change, noticing this new embodiment,
and says to oneself with all smiles and chuckling:
“Now, they listen, really, now they really are listening
really, I am astonished, I am a star up here in the heavens,
shining down on them at night, and
when I could speak, no one wanted to listen to me,
thanks a lot to all thou, thanks to all thou”
As society takes on more and more giving and less trash talk
for what the Activist said, for every action the Activist conveyed,
and for every time the Activist fought them to be heard
exactly how they Activist wanted to heard,
So, continue what you are doing,
if you believe it,
someday it will happen.
Someday they will all listen,
even if it takes a lifetime.
Believe.
And Move forward.

A Poem Called “It’s My Life, It’s my Choices”

It’s My Life, It’s my Choices,

by theamazinJ

Choices matter,
choices are personal,
choices make sense,
people may be concerned,
people may not understand,
people feel obligated to personal choices,
a personal choice is a personal choice
and nothing more and nothing less.
Personal choices help growth
whether we like it or not,
personal choices are sedimental,
personal choices are not your choices,
personal choices are the choices of the individual who makes them,
personal choices help with self-care,
personal choices help with setting and maintaining boundaries,
personal choices give everyone their own dignity and pride,
deciding on things on our own and learning
is everyone’s right and everyone’s distinctions
from another individual,
because everyone matters,
because everyone chooses their destiny,
because everyone has their own way of doing things
to decide what they feel is right at the time,
everyone makes mistakes or chooses based on their own feelings.
To be an activist,
one must know what they want,
know what they don’t want,
and fight for everything they do want.
An activist is strong willed,
an activist fights for what they believe in,
an activist uses evidence to base on their beliefs,
an activist is not influenced by others,
an activist learns everyday what works and what doesn’t,
an activist grows with the people they respect
disregarding the people that hurt them,
an activist’s life can be tough
especially when people hate what we say or do,
an activist’s life can be even tougher
when what we say or do is often put down or shut down,
but an activist must stick to their mission,
must stick to their beliefs,
and continue to support evidence for their beliefs
gaining more and more support from others.
An activist makes hard choices.
Sometimes those choices can hurt others,
and sometimes those choices can eventually change the world for the better.
Martin Luther King,Jr made choices as an activist in this manner,
Rosa Parks as part of that too,
Malcolm X made choices in similar fashion,
Ed Roberts the same,
The Black Panthers even more,
Harvey Milk too,
and yes, even Susan B. Anthony and Harriet Tubman as well.
The list goes on and on all throughout history,
finally, its the choices we make that matter to what we believe,
its’ the choices we make that make us who we are,
and it’s the choices we make that allows our activism to succeed or not,
if there is no evidence and support, our activism failed,
however if we continue to push through and learn from what we know about ourselves,
We become part of the greatest activists who ever lived before.
It’s our choices to forgive ourselves and others that matter
to understand and learn from the past,
sometimes the choices we make is everything no matter what.
An activism moves forward without looking back.

A Poem Called “Silence”

Silence,

by theamazinJ

It’s a quiet day,
a day of silence,
a day of mourning,
a day before the fight,
a day before the revolutionary war,
a day before civil unrest,
a day before civil disobedience,
a day to rest,
a day to boycott,
a day to protest,
a day to preserve spoons,
a day to preserve our energy,
a day to preserve the way we react,
a day to think logically,
a day to think rationally,
a day to not think emotionally.
One person cannot change everything,
everyone needs to agree to change,
It’s not I, the people,
It’s We, the People,
the people have spoken,
the people’s voices were silenced,
the voices were not enough against it
because we the people were ungrateful.
We took things for granted,
we allowed a man to push us around instead,
we allowed our hearts to melt,
we did not protect ourselves and our rights,
we became too argumentative and polarized
allowing our emotions to build up against each other,
by allowing a man to blind us with his thinking
allowing some to eventually vote for him
even with being blindfolded.
Some will never understand each other,
some will never understand what led to
the end of our voices being heard,
some will never understand this
and treat the rest of us as non-compliant
to the man who begins his power today.
The man who is named Donald Trump,
the man who set up his clones to
assist him to run the country,
a man who will never learn,
a man who will always think irrationally,
a man who could start a world war,
a man we all need to overthrow,
a man named Donald Trump who angers so many,
a man named Donald Trump who is too selfish,
and a man who is too similar
to too many past evil men in history.
Let’s fight, let’s not be complacent,
let’s begin the revolt,
and let’s begin to speak our voices
until that man is overthrown,
until the government finally listens,
and until we have what we want.
Nothing happens without a war sometimes,
Nothing about us, without us!